My mission
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Jayden has CMS, wich stands for congenital myasthenic syndrome. CMS is a genetic neuro muscular disease .
The journey from when I was born to finally getting a diagnosis was very long and difficult. After lots of researching my mum and dad realised there is nothing out there to explain CMS to children or even their mums and dads in a way everyone would understand.
I would like to do something about that so I am dreaming about writing a childrens book about it,to help bring awareness and also help other kids like me. As there was also not really any videos out there explaining CMS to children I have made a clip explaining it.
I also have my very own Facebook page where people can follow my journey and learn more about CMS, so I can bring more awareness for this condition that's now a huge part of me.
